What is Genetics? : Frequent Questions & Answers

If I participate in genetic research, can my genetic information be given out or sold?

When you participate in genetic research at the Hussman Institute for Human Genomics (HIHG), your personal health and family information is kept confidential. We do not allow non-researchers or people outside of the HIHG to look at or use the information that is collected for the research study. We would need your permission before we could use your information for any other purpose. Your DNA that is used for research will not be used to identify you for criminal activity or for paternity testing. Any time you are involved in research at any institution, you should be explained your rights as a participant and how your information will be kept private and confidential.

To read more about the protections for research participants, visit: US Department of Health and Human Services